Russell-Silver syndrome

There are a number of Facebook groups and advocacy organizations that help people with Russell-Silver syndrome (RSS) and their families connect with others who have been impacted by this syndrome.

The two largest, private Facebook groups for English-speaking families are:

• A Day in the Life - Russell Silver Syndrome & SGA Families - MAGIC Foundation
• Russell-Silver Syndrome Support

Read the Description sections on the above pages for information about how to join each group.

The following public Facebook group is designed to help families find information about supporting people affected by RSS:

• Russell Silver Syndrome RSS/SGA-Information & Support

You can also search Facebook for additional Pages or Groups supporting people and families impacted by Russel-Silver syndrome. There are many Facebook groups within many countries that are language-specific.

The MAGIC Foundation provides information and support for people with RSS and their families. The MAGIC Foundation has RSS support groups in several countries:

The MAGIC Foundation RSS Patient Support Division
4200 Cantera Dr.
Warrenville, IL 60555
Toll-free: (800) 362-4423
Email: rss@magicfoundation.org
Russell Silver syndrome web page: https://www.magicfoundation.org/Growth-Disorders/Russell-Silver-Syndrome/

Patients and families in countries other than the United States can also visit the website for the Silver Russell Syndrome Global Alliance to find RSS support groups in their country. This website provides information, connects families to patient support groups in their specific country, and provides contact information for parents of children with RSS or medical professionals in specific countries who are willing to be contacted.