National Center for Advancing and Translational Sciences Genetic and Rare Diseases Information Center, a program of the National Center for Advancing and Translational Sciences

Congenital contractural arachnodactyly

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I have Beals syndrome (congenital contractural arachnodactyly). I am a 19-year-old female and I was wondering how tall I would be because of this condition? The symptom is having a tall stature, but how tall? I'm 5'3 right now.
Because many factors influence a person's height, we cannot comment on how tall you will be. We searched the medical literature to learn more about how a person's height might be affected by CCA, and we found that limited information exist regarding this topic. One review article including the clinical findings of 32 individuals with CCA states that patients tend to be tall (>90th percentile) from birth onward, in the absence of curvature of the spine (scoliosis).[1] However, it is important to note that symptoms vary from person to person; therefore, not all affected people are taller than other people in their family.
Last updated: 11/2/2016

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  1. Callewaert BL, Loeys BL, Ficcadenti A, Vermeer S, Landgren M, Kroes HY. Comprehensive Clinical and Molecular Assessment of 32 Probands With Congenital Contractural Arachnodactyly: Report of 14 Novel Mutations and Review of the Literature. Human Mutation. March 2009; 30(3):334-341. https://www.ncbi.nlm.nih.gov/pubmed/19006240.