National Center for Advancing and Translational Sciences Genetic and Rare Diseases Information Center, a program of the National Center for Advancing and Translational Sciences

Fabry disease

Back to List of Questions
Are there any lifestyle or dietary changes that can have a beneficial effect on the life of Fabry sufferers?
For individuals with kidney problems, a low protein diet may be recommended.[1][2] Support from friends and family can help with the emotional difficulties, such as depression, that are often seen in individuals with a chronic illness. Pain management is also an issue for many individuals with Fabry disease. Avoidance of strenuous activity, stress, sun exposure, and temperature extremes can help reduce the frequency and severity of pain.[2] Drinking more water in hot weather and during physical activity can minimize the likelihood of heat exhaustion.[2] Individuals with Fabry disease may also wish to avoid smoking, as it can make lung symptoms worse.[2]
Last updated: 7/8/2015

We hope this information is helpful. We strongly recommend you discuss this information with your doctor. If you still have questions, please contact us.

Warm regards,
GARD Information Specialist

Please see our Disclaimer.

  1. Desnick R. Genetics of Fabry Disease. MedScape Reference. August 23, 2018; https://emedicine.medscape.com/article/951451-overview.
  2. Rima El-Abassi, Singhal Divya, and John England. Fabry's disease. Journal of the Neurological Sciences. 2014; 344:5-19. http://www.ncbi.nlm.nih.gov/pubmed/?term=25106696. Accessed 7/8/2015.