American Association on Intellectual and Developmental Disabilities

The American Association on Intellectual and Developmental Disabilities (AAIDD) is an American non-profit organization focusing on intellectual disability and related developmental disabilities. AAIDD has members in the United States and more than 50 other countries.

American Association on Intellectual and Developmental Disabilities
AbbreviationAAIDD
Founded1876
06-0636098[1]
Legal status501(c)(3)[1]
PurposeTo promote progressive policies, sound research, effective practices, and universal human rights for people with intellectual and developmental disabilities.
Location
Dan Zhang[3]
Margaret Nygren[3]
Revenue (2020)
$2,970,307[4]
Expenses (2020)$3,176,466[4]
Employees (2020)
15[4]
Volunteers (2020)
20[4]
Websitewww.aaidd.org
Formerly called
Association of Medical Officers of American Institutions for Idiotic and Feebleminded Persons,
American Association for the Study of the Feebleminded,
American Association on Mental Deficiency,
American Association on Mental Retardation

History

The AAIDD was founded in 1876 by Édouard Séguin,[5] and is the oldest professional association concerned with intellectual and developmental disabilities. AAIDD advocates for the equality, dignity, and human rights of people with intellectual and developmental disabilities, and for their full inclusion and participation in society. It is headquartered in Silver Spring, Maryland, a suburb of Washington, D.C.

The name of the association[6] has changed five times in its history, reflecting the changes in thinking about the conditions known today as intellectual disabilities:

  • 1876: Association of Medical Officers of American Institutions for Idiotic and Feebleminded Persons
  • 1906: American Association for the Study of the Feebleminded
  • 1933: American Association on Mental Deficiency
  • 1987: American Association on Mental Retardation
  • 2007: American Association on Intellectual and Developmental Disabilities

Mission and goals

The AAIDD's stated mission is to promote progressive policies, sound research, effective practices, and universal human rights for people with intellectual and developmental disabilities.[7]

The association's goals are to:[7]

  1. Enhance the capacity of professionals who work with individuals with intellectual and developmental disabilities.
  2. Promote the development of a society that fully includes individuals with intellectual and developmental disabilities.
  3. Sustain an effective, responsive, well managed, and responsibly-governed organization.

It also has various sub-groups with more specific interests, such as the Religion and Spirituality Interest Network, "an interfaith, interdisciplinary association of professional ordained and lay people who journey with persons with developmental disabilities and their families."[8]

Publications

The AAIDD publishes books, evidenced-based assessment tools, and three peer-reviewed journals.

Journals

The AAIDD encourages a diversity of contributions from different traditions of inquiry and disciplines;[9] all papers must meet the journals' criteria for rigor and peer review to be considered for publication.

  • Established in 1896, American Journal on Intellectual and Developmental Disabilities (AJIDD) is a multidisciplinary journal for reporting original contributions of the highest quality on intellectual disability, its causes, treatment, and prevention. Like its parent organization, the journal has had multiple names through its history. It began as simply the journal of the proceedings and addresses from the association's annual conference, published under the corresponding name of the association. In 1939, it expanded beyond the annual conference report and became known as American Journal of Mental Deficiency. From 1987 until 2007, it was titled the American Journal of Mental Retardation, after which it was given its current title. It is focused primarily on scientific and medical studies and reviews.[10]
  • Established in 1963, Intellectual and Developmental Disabilities (IDD) is a journal of current policy, best practices, and new perspectives on intellectual and developmental disabilities. IDD provides a forum for the dissemination of rigorously reviewed, actionable information and transformative concepts, with a focus on praxis over theory.[11]
  • Established in 2013, Inclusion is a multidisciplinary journal that provides a forum for the presentation and discussion of evidence-based interventions and strategies that promote the full inclusion of those with intellectual and developmental disabilities in society at large.[12]

Books and assessment tools

The AAIDD publishes essential books and tools for professionals and others in the field of intellectual and developmental disabilities. The organization's most well-known book is its definition manual, first published in 1910 and now in its 12th edition: Intellectual Disability: Definition, Diagnosis, Classification, and Systems of Support.[13][14]

It also publishes Supports Intensity Scales (SIS), a group of assessment tools that evaluate the practical support requirements of people with intellectual disabilities. It is available in a child version (SIS-C) and an adult version (SIS-A, 2nd ed.). Both versions assess someone's needed level of support, but adjust for differences in age-related expectations. For example, a child would be expected to have a full-time, live-in caretaker (i.e. a parent or guardian) while for an adult that would qualify as extra support. The assessment is done through semi-structured interviews with those who can give insight to the daily life of the person being assessed, up to and including the person themselves when appropriate. The SIS measures support needs in multiple areas of daily life, including housing, education, employment, medical services, and social activities. Assessors rate different categories according to the frequency of support (e.g., none, at least once a month), amount of support (e.g., none, less than 30 minutes), and type of support (e.g., monitoring, verbal gesturing) that a person requires. The overall Supports Intensity Level is determined based on the Total Support Needs Index, which is a standard score generated from the individual ratings.[15]

Education

As the oldest professional organization in the field of intellectual and developmental disabilities,[16] AAIDD offers educational opportunities to the global disability community,[17] including an annual conference, webinars, and professional research exchanges.

The association's YouTube channel provides short educational videos on topics related to intellectual and developmental disabilities.[18]

See also

References
  1. "American Association on Intellectual and Developmental Disabilities". Tax Exempt Organization Search. Internal Revenue Service. Retrieved October 10, 2019.
  2. "Contact Us". American Association on Intellectual and Developmental Disabilities. Retrieved October 21, 2019.
  3. "Board of Directors". American Association on Intellectual and Developmental Disabilities. Retrieved July 13, 2023.
  4. "Form 990: Return of Organization Exempt from Income Tax". American Association on Intellectual and Developmental Disabilities. Guidestar. July 22, 2021.
  5. "The American Association on Intellectual and Developmental Disabilities (AAIDD) Diagnostic Criteria for Intellectual Disability". Retrieved April 9, 2019.
  6. "About AAIDD". aaidd.org. Retrieved May 23, 2019.
  7. "Mission". aaidd.org. Retrieved April 9, 2019.
  8. "About us". AAIDD Religion & Spirituality Network. January 23, 2017. Retrieved July 27, 2022.
  9. "Journals". aaidd.org. Retrieved May 23, 2019.
  10. "American Journal on Intellectual and Developmental Disabilities". Allen Press. Retrieved July 27, 2022.
  11. "Intellectual and Developmental Disabilities". Allen Press. Retrieved July 27, 2022.
  12. "Inclusion". Allen Press. Retrieved July 27, 2022.
  13. Intellectual Disability: Definition, Classification, and Systems of Supports. American Association on Intellectual and Developmental Disabilities. (12th ed.). Silver Spring, MD: American Association on Intellectual and Developmental Disabilities. 2010. ISBN 978-0-9983983-6-5. OCLC 1252731833.{{cite book}}: CS1 maint: others (link)
  14. "Intellectual Disability: Definition, Diagnosis, Classification, and Systems of Supports, 12th Edition". www.aaidd.org. American Association on Intellectual and Developmental Disabilities. Retrieved July 13, 2023.
  15. "Product Information". aaidd.org. Retrieved May 23, 2019.
  16. "Intellectual Disability".
  17. "Education". aaidd.org. Retrieved May 23, 2019.
  18. "aaiddvideos". YouTube. Retrieved May 23, 2019.
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