Health Data Consortium

The Health Data Consortium (HDC) is a Washington, D.C.-based public-private partnership that advocates for the availability and use of health data, in particular government health datasets, and the improvement of health and health care through patient data accessibility and innovative use of data. HDC is a 501(c)(3) organization.

Health Data Consortium
AbbreviationHDC
Formation2012 (2012)[1]
TypePublic-private partnership
Legal statusNPO
HeadquartersWashington, D.C.
Region served
United States
Executive Director
Chris Boone
Main organ
Board of Directors
Websitewww.healthdataconsortium.org

History

In 2010, the U.S. Department of Health and Human Services launched the Health Data Initiative to make its data available for public use[2][3] and, in collaboration with the Institute of Medicine, hosted a public forum featuring various private, non-profit, and entrepreneurial stakeholder groups to explore how the data could be used to promote innovation that would improve people's health.[4] This forum was held again in 2011[5] and 2012, wherein it was rebranded into its current iteration as the Health Datapalooza.[6][7]

Due to the success of the forum and growing industry interest, HHS, the Robert Wood Johnson Foundation, the California HealthCare Foundation, and other parties involved believed that there needed to be a structured organization independent of the government that could convene stakeholder groups and promote the health data mission year-round. They approached Forum One Communications to help establish this organization as a public-private partnership, which was named the Health Data Consortium.[8]

Leadership

In February 2013, Dwayne Spradlin was announced as acting CEO of HDC.[9] He was succeeded by Dr. Christopher Boone, who was appointed Executive Director in October 2014.[10]

Work

Health Datapalooza

The Health Datapalooza conference continues the work of the Health Data Initiative Forum by convening stakeholders annually. In particular, Health Datapalooza is known for highlighting health care startups that use health data to develop programs and applications by way of a coding challenge[11] or through demos of the applications.[12][13]

Health Data All Stars

The Health Data All Stars is a directory of organizations and websites that offer open health datasets for public viewing and use.[14] The directory currently features over fifty open health data entries.

See also

References
  1. "Welcome! | Health Data Consortium". Archived from the original on 2015-04-15. Retrieved 2015-04-10.
  2. "The Community Health Data Initiative | the White House". whitehouse.gov. Archived from the original on 2020-10-26. Retrieved 2015-04-10 – via National Archives.
  3. "Health Data Initiative Strategy & Execution Plan Released and Ready for Feedback - HealthData.gov". healthdata.gov.
  4. "The Health Data Initiative - Institute of Medicine". Archived from the original on 2013-07-28. Retrieved 2015-04-10.
  5. "The Health Data Initiative Forum - Institute of Medicine". Archived from the original on 2013-11-26. Retrieved 2015-04-10.
  6. "Health Data Initiative Forum III: The Health Datapalooza - Institute of Medicine". Archived from the original on 2015-04-10. Retrieved 2015-04-10.
  7. "Event History | Health Datapalooza". Archived from the original on 2015-03-30. Retrieved 2015-04-10.
  8. "Launching the Health Data Consortium – Two Years Later : Forum One". Archived from the original on 2015-03-21. Retrieved 2015-04-10.
  9. "Account Suspended". www.healthdataconsortium.org.
  10. "Account Suspended". www.healthdataconsortium.org.
  11. "Power To The Health Data Geeks". NPR.org.
  12. "Government & Policy". Healthcare IT News.
  13. "Datapalooza: A Concept, A Conference And A Movement". NPR.org.
  14. "All Stars | Health Data Consortium". Archived from the original on 2015-04-15. Retrieved 2015-04-10.
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