IPPOSI

IPPOSI, the Irish Platform for Patients’ Organisations, Science & Industry, is a Company Limited by Guarantee and a charity based in Dublin. It describes itself as "a patient-led organisation that works with patients, government, industry, science and academia to put patients at the heart of health policy and innovation."[1]

Derick Mitchell is the Chief Executive. It is particularly focussed on issues associated with the use of patients' data.[2] It runs a Patient Education Programme concentrating on clinical trials Health Technology Assessment, health information, connected health and rare diseases [3] and on how drug treatments are financed.[4] It works with the European Patients' Academy on Therapeutic Innovation (EUPATI) and Dublin City University's Centre for eIntegrated Care.[5][6]

It runs conferences and seminars on a variety of topics including data protection.[7]

It is associated with the European Platform for Patients’ Organisations, Science & Industry, based in Brussels which was established in 1994 as part of the initiative to promote patients' rights.[8]

References
  1. "LEGISLATION COMPLIANCE". IPPOSI. Retrieved 28 June 2020.
  2. "IPPOSI's Derick Mitchell on putting patients first". Tech Central Ie. 13 December 2019. Retrieved 28 June 2020.
  3. "'I was put on a cancer drug trial... and later discovered it actually made the cancer progress faster' - Irish woman (46)". Independent ie. 22 September 2017. Retrieved 28 June 2020.
  4. "Fibromyalgia: learning about my illness known as the F-word". Irish Times. 4 October 2016. Retrieved 28 June 2020.
  5. "What will DCU's Centre for eIntegrated Care do for Irish healthcare?". Silicon Republic. 8 June 2018. Retrieved 28 June 2020.
  6. "Centre for eIntegrated Care".
  7. "Should your medical data be off the record?". Irish Times. 24 August 2017. Retrieved 28 June 2020.
  8. Fallberg, L. H. (2000). "Patients Rights in Europe". European Journal of Health Law. 7 (1): 1–3. doi:10.1163/15718090020523007. PMID 12542023. Retrieved 28 June 2020.


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