National Women's Health Network

The National Women's Health Network (NWHN) is a non-profit women's health advocacy organization located in Washington, D.C. It was founded in 1975 by Barbara Seaman, Alice Wolfson, Belita Cowan, Mary Howell, and Phyllis Chesler. The stated mission of the organization is to give women a greater voice within the healthcare system. The NWHN researches and lobbies federal agencies on such issues as AIDS, reproductive rights, breast cancer, older women's health, and new contraceptive technologies. The Women's Health Voice, the NWHN's health information program, provides independent research on a variety of women's health topics.[1]

National Women's Health Network
AbbreviationNWHN
Formation1975
FounderBarbara Seaman
Alice Wolfson
Belita Cowan
Mary Howell
Phyllis Chesler
Founded atWashington, D.C.
Typenon-profit women's health advocacy organization
HeadquartersWashington, D.C.
Websitewww.nwhn.org

History

The NWHN was founded in late 1975 as the National Women's Health Lobby by Barbara Seaman, Alice Wolfson, Belita Cowan, Mary Howell, and Phyllis Chesler. It was created to be both a lobbying organization and to monitor federal legislation and research relating to women's health, Food and Drug Administration (FDA) hearings, and Department of Health, Education and Welfare regulations.[2] By December 1975, the organization was renamed the National Women's Health Network after the group realized that regulatory groups, as opposed to legislative bodies, had more influence on women's health.[2][3]

The first action of the NWHN was a demonstration held outside of the FDA building in Rockville, Maryland, on December 15 and 16 of that year, in order protest against the FDA's approval and lack of oversight of synthetic estrogens. The protest was planned for those days because two scientific studies done on the risks of estrogenic drugs were about to be published in The New England Journal of Medicine and inside the building, the FDA was going to be holding hearings on the risks of DES (diethylstilbestrol)--formerly prescribed to pregnant women in order to prevent miscarriages and other complications, by 1971 DES had been found to cause a rare cancer, clear-cell adenocarcinoma of the vagina, in women and girls exposed to the drug in utero—and whether to mandate patient packaging inserts for estrogen replacement therapy drugs prescribed to menopausal women.[4] On the outside of the building, the demonstrators held a funeral service to memorialize women who had died after taking drugs containing synthetic estrogens. Speakers discussed the risks of taking medications like DES, the morning-after pill, estrogen replacement therapy for menopausal women, as well as combined oral contraceptive pills.[5] Speakers included Jim Luggen, a widower whose late wife had died of a pulmonary embolism caused by the oral birth control she was taking; Mary Daly, a radical feminist theologian and philosopher; a DES daughter Sherry Leibowitz; and Barbara Seaman.[6] The protest had approximately 100 participants and Richard Crout, the head of FDA Bureau of Drugs at the time, attended.[5]

Participants carried signs reading "Feed Estrogen to the Rats at the FDA" and "Women's Health, Not Drug Company Wealth".[7] After the protests and the Nelson Pill Hearings, Patient Packaging Inserts (PPIs) listing side effects were instated for oral contraceptives—the first PPIs in U.S. history.[8]

With the help of a grant from the Ms. Foundation, the NWMN also became a clearinghouse for women's health information, and continues to provide women with objective health information from a feminist viewpoint.[9][2]

The Present

  • The NWHN petitioned the FDA in August, 2006 to cease sales of estrogen testosterone combination treatments.[10]
  • The NWHN Board of Directors includes Susan F. Wood, who served as Assistant Commissioner for Women's Health and Director of the Food and Drug Administration (FDA) Office of Women's Health (OWH) from November 2000 through August 2005, when she resigned on principle due to the continued delay of approval of the emergency contraceptive, Plan B.[11]
  • In 2013, the NWHN joined the All*Above All campaign to lobby for Congress to repeal federal and state restrictions on abortion care coverage.[12]
  • In 2015, the NWHN began fiscal sponsorship of Plan C, a non-profit organization and campaign for access to medical abortion.[13][14]

Values

  • There is worth in women's personal accounts of their experiences, and health policy should echo women's diverse experiences.
  • The normal changes that women experience over their lifetimes should not be over treated.
  • Every woman should have access to quality health care.
  • Information given to women to direct their health decisions should be motivated by evidence rather than profit.
  • Government has the responsibility to provide for the health and welfare of all people.
  • Scientific analysis that takes into account systems of oppression and power is valuable to all.

The 12 Policy Pillars

These are the 12 main priorities, AKA "pillars", of TNWHN as of 2022, that have been updated to be more inclusive [15]

  1. Aging Women
  2. Maternal Health[16] - Black women being three to four times more likely to die from pregnancy-related complications than white women, not including factors such as insurance, socioeconomic status or even location. Practices of racism such as employment discrimination, voter suppression and redlining limit many women of color from accessible maternal healthcare.[17] Even Implicit bias can have a role in hospital settings. For these reasons NWHN's approach to take on this challenge is to support small organizations such as, the Baobab Birth Collection,[18] Black Women Green Future,[19] and The Changing Woman Initiative;[20] which are grassroots organizations that are already working to help pregnant and post-partum people. The Network is also building on past work through their "Raising Women's Voices" program which fundraises for assistance to all maternal health groups all across America.[21]
  3. Sexual and Reproductive Health
  4. Abortion
  5. Contraception
  6. Disability
  7. FDA Advocacy
  8. Breast Health [22] - In the United States, 1 in 8 women will be diagnosed with breast cancer in their lifetime[23] and are at a higher risk of being diagnosed than men.[24] More specifically, breast cancer is more predominate in Hispanic women [25] yet Black women are more at risk as they have a higher chance of death from breast cancer.[26] The NWHN has been working on increasing breast cancer research funding.[27] Additionally, the NWHN motivated the FDA to increase the study of breast implants and awareness in the late 20th century.[28]
  9. Chronic Conditions
  10. LGBTQAI+ Health
  11. Mental Health and Wellbeing - Women between the ages of 18 and 45 are the majority of those who suffer from depression.[29] Since the COVID-19 pandemic, women have self-reported even more increased levels of stress, anxiety, and depression.[30] The pandemic was found to be more taxing for women both at home and in the workplace. Nearly 3/4 of healthcare workers are women, many of whom were on the frontlines during this time.[31] The NWHN is working to increase policy to protect and help women who are struggling with their mental health.[32]
  12. The Social Determinants of Health

Raising Women's Voices

The National Women's Health Network helped found Raising Women's Voices, a national initiative that advocates affordable healthcare for everyone. Raising Women's Voices wants to ensure the national discourse on healthcare reform takes the needs of women into account. Other founding members include Mergerwatch and the Avery Institute for Social Change. Raising Women's Voices includes a list of 26 principles including:

  • High quality health care for all.
  • Ensure provision of the full range of reproductive and women's health services. Such services should include, but are not limited to, maternity care, pre- and post-natal care, contraception, abortion, treatment and prevention of sexually transmitted infections, and fertility treatment;
  • Include comprehensive dental care for both children and adults.
  • Actively address and work to eliminate racial, ethnic, gender and class disparities in health care access, as well as disparities due to immigration status, disabilities and sexual or gender identity.[33]

Publications

Fact sheets and position papers

The NWHN publishes independently researched fact sheets and position papers on a variety of women's health topics including breast cancer, endometriosis, cervical cancer, fibroids, menopause and hormonal therapy, mammograms, abortion, and hysterectomy. Every publication is from an objective, feminist perspective without endorsing any specific treatment plan or method.[34]

The Women's Health Activist

The National Women's Health Network publishes a bimonthly newsletter, The Women's Health Activist. The Women's Health Activist has been in circulation since 1976, but was known as the Network News up until 2001. The newsletter includes articles by NWHN board members, staff members, and contributors from diverse organizations and institutions. Recent contributors have included the National Asian Pacific American Women's Forum, Georgetown University, the National Latina Institute for Reproductive Health, PharmedOut, and SisterLove, Inc.

Content consists of independently researched articles on current events, health policy, awareness campaigns, informational topics, and medical updates. Articles in the Women's Health Activist have spoken out against many government actions including the FDA's re-approval of silicone gel breast implants.[35] The newsletter also includes a Young Feminist section, written by current interns or other young professionals in the health activist field.[36]

Staff & Board of Directors

  • Cynthia A. Pearson - Executive Director
  • Evita Almassi - Communications and Digital Marketing Manager
  • Hannah Camp - Development Associate
  • M. Isabelle Chaudry - Senior Policy Manager
  • Sarah Christopherson - Policy Advocacy Director
  • Erin Evans - Office Manager
  • Susan K. Flinn - Newsletter Editor
  • Michelle M. Lockwood - Development Director
  • Kalena Murphy - Senior State Advocacy Manager for Raising Women's Voices

Board of directors

  • Kimberly Robinson - Chair
  • Kentina Washington-Leapheart - Action Vice Chair

References

  1. "Health Information".
  2. Ruzek, Sheryl Burt (1978). The Women's Health Movement. New York: Praeger Publishers. pp. 150, 155–156. ISBN 0030562368.
  3. Lipnack, Jessica; Stamps, Jeffrey (1982). Networking: The First Report and Directory. Garden City, New York: Doubleday. pp. 18–21. ISBN 0385177720.
  4. "The First FDA Protest (1975)". National Women's Health Network. Retrieved October 5, 2020.
  5. Morgen, Sandra (2002). Into Our Own Hands: The Women's Health Movement in the United States, 1969-1990. New Brunswick: Rutgers University Press. pp. 26–31. ISBN 0813530717.
  6. Seaman, Barbara (January 4, 2011). The Greatest Experiment Ever Performed on Women: Exploding the Estrogen Myth. New York: Seven Stories Press. p. 149. ISBN 9781583228623.
  7. Prescott, Heather Munro (April 27, 2017). "The Pill Kills: Women's Health and Feminist Activism". Nursing Clio. Retrieved October 5, 2020.
  8. "National Women's Health Network | A Voice for Women, A Network for Change". Archived from the original on 2006-09-26. Retrieved 2006-09-05.
  9. "National Women's Health Network | A Voice for Women, A Network for Change". Archived from the original on 2009-10-07. Retrieved 2008-09-04.
  10. "Women's Health Network Petitions FDA to Halt Sales of Estrogen, Testosterone Combination Treatments". Medical News Today. August 28, 2006. Retrieved 2006-09-05.
  11. "National Women's Health Network | A Voice for Women, A Network for Change". Archived from the original on 2009-01-23. Retrieved 2008-09-03.
  12. "All* Above All".
  13. Adams, Patrick (27 April 2017). "Spreading Plan C to End Pregnancy". The New York Times.
  14. Tzortzis, Andreas (5 April 2018). "Profile: Francine Coeytaux". Ageist.
  15. "The Network's 12 Policy Pillars | National Women's Health Network". 2022-10-18. Retrieved 2023-09-20.
  16. "Pregnancy and childbirth | Smith College Finding Aids". findingaids.smith.edu. Retrieved 2023-09-22.
  17. "Working Together to Reduce Black Maternal Mortality | Health Equity Features | CDC". www.cdc.gov. 2023-04-27. Retrieved 2023-09-22.
  18. "Your Health Unlocked: 017- Grassroots Spotlight - Examining the Link Between Health and the Environment with New Voices for Reproductive Justice on Apple Podcasts". Apple Podcasts. Retrieved 2023-09-27.
  19. "Your Health Unlocked: 018- Grassroots Spotlight - Protecting Pregnant People with The Baobab Birth Collective on Apple Podcasts". Apple Podcasts. Retrieved 2023-09-27.
  20. "Your Health Unlocked: 019-Grassroots Spotlight - Protecting Indigenous Health with the Changing Woman Initiative on Apple Podcasts". Apple Podcasts. Retrieved 2023-09-27.
  21. A collaborative initiative of the Avery Institute for Social Change, MergerWatch Project of Community Catalyst And the National Women’s Health Network (May 2001). "Raising Women's Voices for The Health Care We Need": 4. {{cite journal}}: Cite journal requires |journal= (help)
  22. ""Assessing Your Risk for Breast Cancer" (Zeneca Pharmaceuticals), n.d. | Smith College Finding Aids". findingaids.smith.edu. Retrieved 2023-09-24.
  23. "Breast Cancer Facts & Stats | Incidence, Age, Survival, & More". National Breast Cancer Foundation. Retrieved 2023-09-24.
  24. "Breast cancer". www.who.int. Retrieved 2023-09-24.
  25. CDCBreastCancer (2023-07-27). "Basic Information About Breast Cancer". Centers for Disease Control and Prevention. Retrieved 2023-09-24.
  26. CDCBreastCancer (2023-07-27). "Basic Information About Breast Cancer". Centers for Disease Control and Prevention. Retrieved 2023-10-06.
  27. Brown, S. L.; Pennello, G.; Berg, W. A.; Soo, M. S.; Middleton, M. S. (May 2001). "Silicone gel breast implant rupture, extracapsular silicone, and health status in a population of women". The Journal of Rheumatology. 28 (5): 996–1003. ISSN 0315-162X. PMID 11361228.
  28. "Breast Health | National Women's Health Network". 2022-10-18. Retrieved 2023-09-24.
  29. Zender, Robynn; Olshansky, Ellen (September 2009). "Women's Mental Health: Depression and Anxiety". The Nursing Clinics of North America. 44 (3): 355–364. doi:10.1016/j.cnur.2009.06.002. PMID 19683096.
  30. Almeida, Marcela; Shrestha, Angela D.; Stojanac, Danijela; Miller, Laura J. (2020-12-01). "The impact of the COVID-19 pandemic on women's mental health". Archives of Women's Mental Health. 23 (6): 741–748. doi:10.1007/s00737-020-01092-2. ISSN 1435-1102. PMC 7707813. PMID 33263142.
  31. Thibaut, Florence; van Wijngaarden-Cremers, Patricia J. M. (2020). "Women's Mental Health in the Time of Covid-19 Pandemic". Frontiers in Global Women's Health. 1. doi:10.3389/fgwh.2020.588372. ISSN 2673-5059. PMC 8593968. PMID 34816164.
  32. "Mental Health and Wellbeing | National Women's Health Network". 2022-10-18. Retrieved 2023-09-27.
  33. "Raising Women's Voices for the health care we need - Home". www.raisingwomensvoices.net.
  34. "National Women's Health Network | A Voice for Women, A Network for Change". Archived from the original on 2008-09-15. Retrieved 2008-09-03.
  35. "National Women's Health Network | A Voice for Women, A Network for Change". Archived from the original on 2009-10-08. Retrieved 2008-09-03.
  36. "Newsletter Health Articles".
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