Tonya Ingram

Tonya Ingram (September 1, 1991 – December 30, 2022) was an American poet, author, speaker, disability activist, and mental health advocate.[4]

Tonya Ingram
BornSeptember 1, 1991
Cincinnati, Ohio, U.S.
DiedDecember 30, 2022(2022-12-30) (aged 31)[1]
Resting placeHollywood Forever Cemetery[1]
OccupationPoet
Years active2011–2022
Notable worksHow To Survive Today[2]
Notable awardsNew York Knicks Leader of Tomorrow Scholarship[3]
Website
web.archive.org/web/20230117070315/http://tonyaingram.com//

Ingram died on December 30, 2022, waiting for a kidney transplant.[1][5]

Life

Education

Ingram was a graduate of New York University and Otis College of Art and Design.[1]

While at NYU, Ingram performed on the school's poetry slam team, which won the 2013 College Unions Poetry Slam Invitational. Ingram founded the team alongside Eric Silver, Matthew Sparacino, and Safia Elhillo. They were coached by Mahogany Browne.[6][7]

Performance and poetry

Nuyorican Poets Cafe, which Ingram frequently performed at.

Ingram's writing was often about Black feminism and living with Lupus and kidney failure.[8][9][10]

Ingram performed at the Nuyorican Poets Café, The John F. Kennedy Center for the Performing Arts, and Lexus Verses and Flow's variety show.[11][12][13]

Her work was featured in the 2021 Madewell "What Are You Made Of? Creatives of Color" campaign,[14] Hallmark's Mahogany Writing Community and card brand,[15] MIGA Swimwear,[16] The New York Times,[17] To Write Love on Her Arms,[18] and Hello Giggles.[19]

TWLOHA, Mental Health & Recovery organization Ingram wrote for.

Ingram was the curator of Poetry in Color Live! at Los Angeles County Museum of Art.[1]

Journalism and activism

In addition to poetry, Ingram wrote and contributed to high-profile journalistic pieces on wasted organ donations, the dysfunction of the American healthcare system, the impact of COVID-19 on disabled people, and other disability rights issues.[9][20][21] In 2021, she testified as a patient on the kidney transplant waitlist on a House of Representatives hearing regarding the organ transplant system.[1][22][23]

Surfing

In 2020, Ingram learned to surf through Color the Water and AdventureCrew, BIPOC surfing communities, and attended a surf retreat in Nicaragua.[24][1]

Search for a kidney

Efforts and advocacy

In 2019, at age 27, Ingram posted on Instagram looking for a living person willing to become her kidney-donor. The organ procurement system (OPS) in the United States, run by the United Network for Organ Sharing (UNOS), as of 2019, failed to recover around 28,000 organs a year. Utilizing journalism, Ingram and writer and organ-recipient, Kendall Ciesemier, asked the government to hold the organizations involved in OPS accountable, believing this would result in Ingram receiving a kidney. Ingram wrote an opinion essay; appeared in a government video; wrote letters to members of the Biden administration, including the Centers for Medicare and Medicaid Services (C.M.S.) administrator Chiquita Brooks-LaSure and the head of the Health Resources and Services Administration, Carole Johnson; worked with members of Congress, including Representative Katie Porter; and even testified before the House Oversight Subcommittee on Economic and Consumer Policy in May 2021. [9][25][26][27]

Aftermath

Ingram told the House Oversight Subcommittee on Economic and Consumer Policy that she would die without the federal government's urgent action. A year and a half later, on Dec. 30, 2022, Ingram died of complications from kidney failure.[25]

In 2022, Ingram was one of 12,000 people on waiting lists who died or became too sick to receive a transplant.[28]

Ingram's friend and fellow journalist, Kendall Ciesemier, commented on future potential for intervention in the organ procurement system by the American government: [25][29]

"The solution already has bipartisan support and would be both cost-saving and lifesaving. The C.M.S. has projected that holding these government contractors accountable would save more than 7,000 lives a year — translating to $1 billion saved in forgone dialysis. If the 28,000 organs that go to waste each year were recovered and transplanted, the wait for livers and lungs could disappear within just two years...

Sometimes I wonder if the problem doesn't get solved because so many of the heroic advocates who square off against executives and their lobbyists have disappeared in sickness or in death. As someone born into illness, I've seen many of my young, sick friends die. It's always horrible, but Tonya's death was preventable. She ‌was the victim of a broken system, a system she tried so hard to change. Before too many others follow, Congress needs to hold the Biden administration to the bipartisan recommendations of the Senate Finance Committee: publish critical data, break up the national organ monopoly and replace the O.P.O.s whose failures hold patients' lives hostage.

Tonya did her part. Now it's on the Biden administration to finish the job."

Death

Ingram was found unresponsive during a wellness check at her apartment around noon on December 30, 2022. Her death was announced in an Instagram post on New Year's Day.[1]

Hernandez and his wife Alyesha Wise were close friends of Ingram's and raised $30,000 for funeral arrangements and to build a trust to send Ingram's 15-year-old younger sister to college.[30] With the money, they honored Ingram's wish to have a green burial underneath a tree.[1] The ceremony to bury her occurred on the grounds of Hollywood Forever Cemetery under a California Oak on January 27, 2023.[31]

An article from the Los Angeles Times states, "Ingram was on the kidney donor wait list for three years. In an interview, [Matthew "Cuban"] Hernandez said he believed her death was preventable."[1] The Biden administration subsequently announced intentions to reform the organ transplant system.[32][33][34]

Works

Books

  • Growl and Snare, Penmanship Books, 2013[35]
  • Another Black Girl Miracle, Not a Cult, 2018[36]
  • How to Survive Today, Wild Awake Publishing, 2020[37]

Performed Poems

  • "On Praying to God While Taking the SAT Exam", Brave New Voices, 2011[38]
  • "Thirteen", Intermedia Arts, 2013[39]
  • "Unsolicited Advice (after Jeanann Verlee)", CUPSI New York City, 2013[40]
  • "Isms", NPS Boston, 2013[41]
  • "Khaleesi", NPS Boston, 2013[42]
  • "I Am Twenty-Two", NPS Oakland, 2014[43]
  • "Raise Up", The Kennedy Center, 2014[11]
  • "Monster", NPS Oakland, 2015[44]
  • "We Are Full", NPS Oakland, 2015[45]
  • "Live", NPS Oakland, 2015[46]
  • "Suicide", Da Poetry Lounge Slam, 2015[47]
  • "An Open Letter to My Depression", BuzzFeed, 2015[48][49]
  • "Seven Commandments", Sofar NYC, 2016[50]
  • "I Am 24", Brooklyn Slam, 2016[51]
  • "Dear Discouraged", To Write Love On Her Arms, 2016[52]
  • "Until the Stars Collapse", Art Share, 2018[53]
  • "Here is What Loneliness / Love Tells You", Los Angeles Theatre Center, 2018[54]
  • "For the Next Lover", Los Angeles Theatre Center, 2018[55]
  • "On Days You Miss Your Ex", Los Angeles Theatre Center, 2018[56]
  • “how to be strong”, To Write Love On Her Arms, 2019[57]

Awards & Titles

Interviews

  • "Lupus: Poet Tonya Ingram on Navigating the Organ Donor System", So Life Wants You Dead Podcast[63]
  • "Dating, Self-Care, and Chronic Illness", Just Break Up Podcast[64]
  • "Another Black Girl Miracle", We Have Jobs We Swear Podcast[65]
  • "The Journey and Intersections of Mental Health and Faith", Yas and Amen Podcast[66]
  • "007", Keep Creating Podcast[67]
  • "Tonya Ingram", Sexually Satisfied Woman Series[68]

References

  1. Deng, Jireh (23 January 2023). "Tonya Ingram, an inspiring L.A. poet and 'lupus warrior,' died waiting for a kidney". Los Angeles Times. Archived from the original on 2023-05-10.
  2. Ingram, Tonya (2019-11-26). How To Survive Today: Poems, Prompts, and Affirmations for Those of Us Still Finding Our Way. Wild Awake Publishing LLC. ISBN 978-1-7334637-6-8.
  3. "WNBA Names New York University Student as a Leader of Tomorrow". Diverse: Issues In Higher Education. 2011-05-24. Archived from the original on 2023-05-10. Retrieved 2023-01-22.
  4. Lang, Riley (2023-01-06). "In Memoriam of Tonya Ingram". Button Poetry. Archived from the original on 2023-05-10. Retrieved 2023-01-22.
  5. McBride, Dr Maureen. "Bonnie Raitt's song of the year spotlights organ donation. Too often, we waste that gift". USA TODAY. Retrieved 2023-04-11.
  6. Abrams, Jenessa (2012). "With Tonya Ingram – Confluence". New York University. Archived from the original on 2023-05-10.
  7. "NYU Wins National Collegiate Poetry Slam". Medium. 16 November 2016.
  8. Enciso, Ana María (2021-02-03). "Tonya Ingram, a Voice to Help You Recon Your Wounds". BELatina. Retrieved 2023-01-22.
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  10. Ingram, Tonya (2015-04-10). "This Poet's Advice Left Championship Judges in Awe". Everyday Feminism. Archived from the original on 2023-05-10. Retrieved 2023-05-10.
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  17. "Being Women: Poetry and Imagery". The New York Times. 2018-08-17. ISSN 0362-4331. Retrieved 2023-01-22.
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  20. Ingram, Tonya; Reid, Angelo; Bein, Melissa; Bertrand, Maddi; Ciesemier, Kendall (2019-06-11). "Opinion | 11,000 Americans Will Die Waiting for Transplants This Year". The New York Times. ISSN 0362-4331. Archived from the original on 2023-05-10. Retrieved 2023-01-22.
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  26. "Rep. Porter goes live with Tonya Ingram and Jennifer Erickson to discuss new measures to hold organ procurement organizations (OPOs) accountable". Facebook. Retrieved 2023-02-07.
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  29. "Trump's Organ-Donation Policy Fix Would Save Lives". Bloomberg. 2021-03-24. Archived from the original on 2023-05-10. Retrieved 2023-02-07.
  30. "We're beginning to raise funds for our sister Tonya's home going". Retrieved 2023-01-24.
  31. "We will be holding services and a celebration of life for Tonya". Retrieved 2023-01-24.
  32. Stolberg, Sheryl Gay (2023-03-22). "U.S. Organ Transplant System, Troubled by Long Wait Times, Faces an Overhaul". The New York Times. ISSN 0362-4331. Archived from the original on 2023-05-10. Retrieved 2023-04-06.
  33. "Troubled U.S. organ transplant system targeted for overhaul". Washington Post. ISSN 0190-8286. Archived from the original on 2023-05-10. Retrieved 2023-04-06.
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  36. "Another Black Girl Miracle". Atomic Books. Archived from the original on 2023-05-10. Retrieved 2023-01-22.
  37. Ingram, Tonya (2019-11-26). How To Survive Today: Poems, Prompts, and Affirmations for Those of Us Still Finding Our Way. Wild Awake Publishing LLC. ISBN 978-1-7334637-6-8.
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