National Center for Advancing and Translational Sciences Genetic and Rare Diseases Information Center, a program of the National Center for Advancing and Translational Sciences

Dysfibrinogenemia

Back to List of Questions
How many people are affected by dysfibrinogenemia?
Congenital dysfibrinogenemia is considered rare, but the true incidence is unknown since many forms don't cause signs or symptoms.[1] In the literature, only 200-300 families have been reported.[2]

Approximately 50% of patients with severe liver disease have bleeding tendencies secondary to abnormal fibrinogen (acquired dysfibrinogenemia).[2]
Last updated: 7/14/2016

We hope this information is helpful. We strongly recommend you discuss this information with your doctor. If you still have questions, please contact us.

Warm regards,
GARD Information Specialist

Please see our Disclaimer.

  1. Caroline Bérubé. Disorders of fibrinogen. UpToDate. Waltham, MA: UpToDate; June, 2016;
  2. Russell Burgess. Dysfibrinogenemia. Medscape Reference. October 21, 2015; http://emedicine.medscape.com/article/199723-overview.