National Center for Advancing and Translational Sciences Genetic and Rare Diseases Information Center, a program of the National Center for Advancing and Translational Sciences

Huntington disease

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I am a personal trainer working with a client who has HD.  While I have seen progress with the exercises we are doing, I am looking for more information regarding the types of exercises that are found to be most effective or certain exercises that should be avoided.
The National Institute of Neurological Disorders and Stroke (NINDS) states that, "It is extremely important for the person with HD to maintain physical fitness as much as his or her condition and the course of the disease allows. Individuals who exercise and keep active tend to do better than those who do not." In 2010, the Huntington's Disease Society of America published a booklet on Physical and Occupational Therapy that provides information on therapy for the different stages of HD. The Huntington Society of Canada also provides information in their Healthcare Professionals Series: Exercise for People with Huntington Disease.

Despite these recommendations, there has been conflicting research about exercise and HD. Some research has shown exercise can be beneficial, while other research has shown exercise could be harmful. The Huntington's Disease Society of America posted the article, "Exercise Found Harmful in a Mouse Model," which explains the conflicting research. It is very important for a person with HD to consult their doctor to develop an appropriate fitness plan.
Last updated: 7/8/2015

We hope this information is helpful. We strongly recommend you discuss this information with your doctor. If you still have questions, please contact us.

Warm regards,
GARD Information Specialist

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