Indian hospital

The Coqualeetza Indian Hospital which was located in Sardis, British Columbia,

The newly-created federal Department of National Health and Welfare took over the building and running of Indian hospitals in 1946 as part of Canada's new welfare state policies following the Second World War.[10] The national government began a large-scale operation, run under the auspices of the Advisory Committee for the Control and Prevention of Tuberculosis among Indians, to isolate and reduce the occurrence of the disease in northern populations.[11] This included surveys of infection as well as forcible removal and confinement of those infected. The federal government made the choice not to build hospitals in the north but to evacuate infected individuals to the south of Canada and invest in facilities there.[11] Several sanatorium, referred to as Indian Hospitals, were opened in Ontario and Quebec to accept evacuees, such as the Moose Factory Indian Hospital, opened in 1949, to "isolate the disease" on an island.[12] The first state-run Indian Hospital was Charles Camsell Indian Hospital in Edmonton, opened in 1946 after converting an Indian residential school into a medical facility.[10] By 1960, there were 22 federally-funded Indian hospitals.[4] Most estimate that the cost of care in Indian hospitals was about half of what settler patients received, often in segregated hospitals side by side.[4]

Part of the national operation were ships dedicated to carrying TB-infected passengers from Northern Canada to the sanatorium. One such ship was CGS C.D. Howe, part of the Eastern Arctic Patrol or Eastern Arctic Medical Patrol, a ship which was specially fitted after 1946 with medical facilities quarantined away from crew quarters, which ran from 1950 to 1969.[13][14] The C. D. Howe had 30 beds for Inuit patients and crew space for 58, as well as a helicopter for transferring patients.[15] The ships were equipped with x-ray technology to diagnose infections, and patients were marked on the hand with identifying numbers and the results of their tests.[11] The Western Arctic Patrol mostly delivered patients to the hospital in Edmonton; the Eastern, to Hamilton.[16] It was more common in western parts of the country to airlift patients than to ship them by water.[17]

Settler medical professionals believed the "Indian TB" was a strain that posed a threat to the settler population, misunderstanding at the time the process of immunity through exposure, and the Aboriginal populations' lack of resistance to the disease brought unknowingly by settler carriers.[10] The Inuit populations was considered to be "racially careless" about their health and containing the spread of the disease.[10]

A particularly strong wave of the epidemic started in 1952. Canadian settler medical professionals attribute the spread of the disease, besides the Indigenous populations' lack of immunity, to overcrowded living conditions in Inuit communities - after forcible relocation by the Canadian government - and weakened constitutions through limited food supplies.[18] Tuberculosis spread easily through the Inuit and First Nations populations, including in Canadian Indian residential schools, where healthy children were routinely exposed to infected children and poor sanitary conditions and ventilation contributed to the spread.[19] In one school, the death toll was as high as 69%. In some residential schools, TB infection rates were as high as 80%; schools that held infected children due to overburdened hospitals were given a stipend to provide healthcare to their students of fifteen cents per child per day.[20]

In 1953, mortality rates from TB in the Inuit population was 298.1 per 100,000 patients, compared to 9.9 per 100,000 in southern and settler communities.[21] It is estimated that by 1955, almost 1,000 Inuit had been removed for treatment in southern Canada.[15]

In 1953 it was also made a crime for an Indigenous person to refuse treatment or to leave a hospital before being discharged. Patients who wished to return home to their communities were arrested and taken to jail or brought back to the hospitals.[4]

A 1983 study by S. Grzybowski and E. Dorken titled Turburculosis in Inuit found that:

In the 1950s tuberculosis became a grave problem with the mortality rate approaching 1% per annum and the incident rate almost 3%. The annual risk of infection has been estimated at 25% per annum. These are probably the highest rates recorded anywhere in the world in the 20th century.[18]

Medical professionals continue to congratulate themselves on successfully stemming the tide of the disease through such interventions of forcible removal of infected individuals from their homes.[18] At several points when rates of TB diagnosis lessened, the efforts to prevent the disease were defunded, resulting in an increase in infection rates again.[22]

Indian hospitals began being phased out in the late 1960s and every Indian hospital was closed or converted to desegregated institutions by 1981.[23][24]

Research conducted by Oloffson, Holson, and Partridge describes the conditions endured by Inuit communities during the diagnosis process:

Being told that they had to leave with the hospital boat or airplane to go to a hospital in the South was a frightening experience for most of the patients.... Many were diagnosed while still asymptomatic, and as such there was often great confusion as to why they were being taken from their homes and families. Even when they were aware of their condition, it was not always made clear to the patients where they were being taken or if they would ever be returned, contributing to an atmosphere of fear and desperation. In some cases, Inuit who knew that they were seriously ill would hide out on the land once they had heard that the hospital boat was arriving. In these situations, a helicopter, originally intended to fly ahead of the boat to check ice conditions or bring medical personnel to shore if the boat could not dock, was used to survey the land, find anyone hiding, and bring them to the boat for examination.[11]

Shawn Selway states that while leaving their homes for treatment was not mandatory, most Inuit felt pressured in a way that could not be considered consensual.[16]

Because the skin test for TB was unreliable, diagnostic ships began to rely more on chest x-rays, exposing children and adults to yearly doses of radiation, for some community members over 40 years.[25]

In 1928, doctors who later ran the Fort Qu'Appelle Indian Hospital were given federal funding to develop drugs to fight the TB epidemic. In 1933, they began running experimental vaccination trials on Indigenous children from nearby communities.[25] The vaccination was declared a success despite limited validation; there were also several problems, including a need to re-vaccinate every two years. Also, people vaccinated with the drug would test as false positives by the Mantoux skin test for TB that was in standard use, meaning successfully inoculated people would end up in hospital anyhow.[25] In 1952 two inoculated girls tested positive for TB, but this was hushed up by government officials. By 1954, this vaccination was a mandatory treatment across Canada.[25]

When an Indigenous person had a tuberculosis diagnosis confirmed, they were rarely allowed back into their communities until deemed free of tuberculosis. Evacuees could not go ashore to collect their belongings, say good-bye, or make arrangements for their families - children were often adopted by neighbours and family members in Inuit communities.[26]

Children, even infants, who were diagnosed with tuberculosis would be taken from their parents and sent with the boat. Men and women would be forced to leave their families behind [...] at times left without a father to hunt or a mother to make clothes or care for the children. Evacuees in turn faced great emotional distress, knowing that it would be difficult for their family to survive without them. As exemplified in the quote above, so great was the desperation, that the minister would often marry couples when one of them had to leave for the hospital, in order to sanctify the union while there was still time to do so.[11]

Fear of removal was a deterrent to getting tested, and even deterred remote Inuit from going to town while the ship was docked:

In 1955, RCMP reported that Inuit in the Kimmirut area were now avoiding the settlement at shiptime because they had no desire of “being evacuated to the Land of No Return.”[15]

Medical ships' helicopters were sometimes used to seek out and forcibly pick up Inuit who were hiding in rural areas.[15] Some former patients assert that they were sent to sanatoria for treatment without actually testing positive for tuberculosis:

"[My mom] was told she had TB, but many years later, when she went to the doctor, they said to her, 'No — you would have had scars on your lungs,'" Hunt said.[27]

Some researchers agree with this assessment, indicating that some Indigenous community members were forcibly removed from their land by means of a TB diagnosis:

Declaring individuals contagious was a good means of control, keeping them out of trouble or out of circulation while the task of clearing the land was underway.[7][17]

Some rates of removal of Indigenous people from their communities have been quoted as 5,240 Inuit from 1953 and 1961, compared to a total population in the Eastern Arctic of about 11,500.[28] The Nanaimo hospital saw 14,000 patients during its two-decade tenure.[29]

From 1950 to 1965, 1,274 Inuit and Cree patients were removed from their communities and placed in institutional care in Hamilton, Ontario, alone.[30] At this hospital, Inuit patients carved and sold around 200 soapstone pieces a month, with the hospital taking a 30% commission on all sales. The total value of Inuit art sold through this process was over $10,000CAD per year.[31]

Some researchers assert that hospitals kept patients interned for years or decades to increase government funding received, and to provide a supply of patients for experimental medical procedures.[7]

The average stay in sanatoria ranged depending on the availability of drug treatments introduced in the 1940s. In 1949, at the Mountain Sanatorium in Hamilton, a patient stayed for an average of 562 days; in 1956, the average stay was 332 days.[11]

Many evacuees were sent to institutions with English and French-speaking staff, which made communication difficult. It has been alleged that hospitals were staffed by foreign-trained doctors whose credentials were not recognized in Canada.[32] In several hospitals, patients were referred to by assigned identification numbers, the disc number system, instead of their names.[33]

Low salaries, poor working conditions, and the isolated locations of many hospitals made it difficult to maintain adequate numbers of qualified staff.[34] These hospitals also did not receive the same level of funding as facilities for non-Indigenous communities. Although treatment for tuberculosis in non-Indigenous patients improved during the 1940s and 1950s, these innovations were not propagated to the Indian hospitals.[4] In hospitals such as the Queen Mary (Toronto), where settler and Indigenous children were treated side-by-side, a white former patient reports being given pills while Indigenous patients were given injections.[33]

There are high rates of reported depression in patients. People forcibly transported and confined in sanatoria were often given little information about their treatment and rights:[27]

"Perhaps you are wondering why you are brought down from your home leaving your friends and perhaps family behind. The reason is that you are sick, and if you were left at home, you may endanger those at home. So you are here to get well again… But do not be afraid. Nobody here will harm you."– Mountain Views, Hamilton Sanatorium, 1955[30]

Several hospitals were converted military buildings that were improperly equipped for their new use. Overcrowding was common and many patients were at risk of inadequate emergency exits in case of fire.[4][20] Patients were often underfed or deprived of food and drink.[32] Others report being force-fed unfamiliar foods, and being forced to eat their own vomit.[35][36] Some patients were tied to their beds, including being tied face-down overnight, and suffered other abuses from hospital staff.[31][36] One patient reports being tied to her bed for almost 24 hours a day for nine years:[27]

"The only time we were untied was first thing in the morning to have a bath and then change our pajamas and go back to bed." [...] She said the ties were also taken off for meals they ate in the bed. If they needed to use the bathroom, they were brought a bedpan.[27]

Most were on strict bed rest and some lost the ability to walk after several years of confinement.[11][27] There are documented cases of hospital staff putting casts on the legs of patients who would not comply.[37]

Drees said in cases of bone TB, the bacterium would make bones brittle, so children and adults would be immobilized in full-body casts or strapped onto stretchers to be still.[27][23]

Children who did such things as sit up in bed or put a foot on the floor were punished by being strapped, spanked, or being forced to wear a straitjacket for a period of time.[11]

Whonnock recalled a time when she had chickenpox and was served turnips. The smell made her ill and she threw up on her plate. A nurse hit her with a rod and made her eat the vomit.[27]

There are survivor reports of sexual assault by hospital staff, including children being groped as a matter of course during monthly X-ray examinations, and a pre-teen having a sexual relationship with an adult orderly.[27][23][38] Patients report being threatened and told not to talk about their experiences at the hospitals.[24]

At least one Indian hospital, the Fort William Sanatorium, served a dual use as a residential school, where tuberculosis-diagnosed children received education.[20] Some rooms were converted for classroom use, and students who were bedridden received bedside lessons.[39] This school received funding from the Department of Indian Affairs for its educational expenses.[38] Reports indicate that "'at least one teacher provided education to Aboriginal children between 1942 and 1945'" and that it "housed a Provincial School starting as early as 1944 to as late as 1971, and an Indian Day School between 1950 and 1953."[40] Survivors of Fort William petitioned to have their cases included in the Residential Schools Settlement, but were denied as the sanatorium was not accepting patients primarily for educational purposes.[41]

From 1949 to 1953, 374 experimental surgeries were performed on TB patients, without the use of general anesthetic at the Charles Camsell Indian Hospital.[42] In 1956, Charles Camsell Indian Hospital in Edmonton used its patients to test versions of para-aminosalicylic acid (PAS); they also performed trials of a thyroid-stimulating hormone for a study of hypothyroidism in Indigenous people.[4] Besides treatment with drugs, surgical procedures were performed on patients, including the intentional collapsing of lungs and removal of ribs, causing deformities.[13][33] At Charles Camsell in Edmonton, medical staff used local anesthetic on Indigenous patients during such processes as chest surgery and rib removals, so that the patients would be awake and aware during the procedures.[23][7] Other hospital patients report forced sterilization,[23][36] with 125 sterilizations documented at the Charles Camsell hospital between 1971 and 1974.[33]

Some patients report that in the early stages of tuberculosis care, children were being used "as guinea pigs" for experimental treatment for the infection:[43][44]

Documentation was uneven at best; people's names were written down incorrectly, sometimes resulting in a cured patient being sent home to the wrong area, or the family of a dead patient not being notified. Many patients who returned home after their confinement found it difficult to readjust to their culture, having forgotten skills and languages.[11] Two separate cases of babies being switched at birth (sent home with the wrong parents) at Norway House have been reported; these errors were only discovered many years later.[45]

Many of those who died while in treatment were buried in unmarked graves; many bodies were not returned to their families.[38] One estimate puts the number of missing people and unreturned bodies at 700-800.[46] A then-student of a nearby residential school remembers digging graves for tuberculosis victims from the Charles Camsell Hospital in Edmonton.[43]

The Canadian government has yet to perform any reconciliatory efforts or offer apologies for the forcible confinement of Inuit.[28] Government officials have started to meet with Inuit representatives to discuss access to archival documents and begin the process. A federal program called Nanilavut has been performing research since 2008 and has identified at least partial records for over 4,500 evacuees.[21] This database is being prepared for release as of fall 2017.

As of October 2018, there are expectations of a future federal apology for the Indian hospital system.[35] Discussions around an official apology were held in 2017 between the federal government and Nunavut Tunngavik Inc. The group is asking for help with identifying the graves of Inuit patients buried in the south of Canada, as well as counselling services for former patients and their descendants. The government has acknowledged a future apology but not confirmed a date or location. Prime Minister Justin Trudeau issued an apology on March 8, 2019, and announced a federal government project called "Nanilavut," saying:[55][56]

The Nanilavut initiative will be more than just an apology. That means it will include measures, which have already started, aimed at helping Inuit find the graves of family members who were transported to southern Canada for TB treatment between the 1940s and the 1960s.[55]

In January 2018, a $1.1 billion class-action lawsuit was filed against the Canadian government to provide compensation for victims of Indian hospitals and their descendants.[27] The lawsuit represented 30 former patients by the end of January 2018.[32] This lawsuit also points to the inadequate care, physical and sexual abuse, and the long term negative health and psychological impacts associated with the hospitals.[23]