Cancer Survivorship Data and Statistics

Cancer Registries and the United States Cancer Statistics

Cancer survivors, the medical community, public health professionals, researchers, and policy makers need information about newly diagnosed cancer cases and cancer deaths to prevent and control cancer. CDC collects cancer data on 96% of the United States population through the National Program of Cancer Registries (NPCR), consisting of data from cancer registries in 45 states, the District of Columbia, Puerto Rico, and U.S. Pacific Island jurisdictions. The NPCR collects data on all cancer cases, deaths, and the types of treatment patients receive.

NPCR, together with the National Cancer Institute’s Surveillance, Epidemiology, and End Results (SEER) Program, publishes annual cancer incidence and mortality data in the United States Cancer Statistics: Incidence and Mortality Web-Based Report. NPCR and SEER together form one of the most sophisticated public health surveillance systems in the United States, and the basis for nearly all cancer statistics and projections. These cancer surveillance activities are important for all cancer research, including cancer survivorship research.

Improving Cancer Survivorship Care Planning Through the Web Plus Survivorship Module

Several expert organizations recommend that oncologists provide patients and their primary care providers with a treatment summary as part of a comprehensive survivorship care plan. Unfortunately, delivering quality cancer survivorship care plans is challenging.

To help remove obstacles to delivering cancer survivorship care plans, CDC and the Colorado Central Cancer Registry developed a secure, Web-based application that allows hospitals or providers to use surveillance data from the central cancer registry to pre-populate and semi-automate care plans. The Web Plus Survivorship Module includes templates for breast and colorectal cancers, a generic template for all other cancers, and a collection of static resource documents covering general cancer information, physical activity, nutrition, stress management, sexual health, and smoking cessation.

References

¹U.S. Cancer Statistics Working Group. United States Cancer Statistics: 1999–2012 Incidence and Mortality Web-based Report. Atlanta: U.S. Department of Health and Human Services, Centers for Disease Control and Prevention and National Cancer Institute; 2015. Available at: www.cdc.gov/uscs.

²Ryerson AB, Eheman C, Styles T, Rycroft R, Snyder C. Connecting the dots: linking the National Program of Cancer Registries and the needs of survivors and clinicians. American Journal of Preventive Medicine 2015;49(6S5):S528s–S535.

³Singh SD, Henley SJ, Ryerson AB. Summary of notifiable noninfectious conditions and disease outbreaks: surveillance for cancer incidence and mortality—United States, 2011. MMWR 2015;62(54):11–51.

⁴O’Neil ME, Henley SJ, Singh SD, Wilson RJ, Ortiz-Ortiz KJ, Pérez Ríos N, Torres Cintrón CR, Tortolero Luna G, Zavala Zegarra DE, Ryerson AB. Invasive cancer incidence—Puerto Rico, 2007–2011. MMWR 2015;64(14):389–393.

⁵Kohler BA, Sherman RL, Howlader N, Jemal A, Ryerson AB, Henry KA, Boscoe FP, Cronin KA, Lake A, Noone AM, Henley SJ, Eheman CR, Anderson RN, Penberthy L. Annual report to the nation on the status of cancer, 1975–2011, featuring incidence of breast cancer subtypes by race/ethnicity, poverty, and state. Journal of the National Cancer Institute 2015;107(6).

⁶Henley SJ, Singh S, King J, Wilson R, O’Neil ME, Ryerson AB. Invasive cancer incidence and survival—United States, 2011. MMWR 2015;64(9):237–42.

⁷Chen VW, Eheman CR, Johnson CJ, Hernandez MN, Rousseau D, Styles TS, West DW, Hsieh M, Hakenewerth AM, Celaya MO, Rycroft RK, Wike JM, Pearson M, Brockhouse J, Mulvihill LG, Zhang KB. Enhancing cancer registry data for comparative effectiveness research (CER) project: overview and methodology. Journal of Registry Management 2014;41(3):103–112.

⁸Wilson RJ, Ryerson AB, Zhang K, Dong X. Relative survival analysis using the Centers for Disease Control and Prevention’s National Program of Cancer Registries surveillance system data, 2000–2007. Journal of Registry Management 2014;41(2):72–76.