Public Health Webinar Series on Blood Disorders

September 21, 2017

Wendy Owens, MA
Director of Research
Hemophilia Federation of America

It’s All About CHOICE: Findings from a Survey for People Seeking Care Outside of Hemophilia Treatment Centers

In this webinar, Ms. Owens presents an overview of the CHOICE Project (Community Having Opportunity to Influence Care Equity).  CHOICE is a project in partnership between the Hemophilia Federation of America and the Centers for Disease Control & Prevention.   She discusses the strategies used to integrate the bleeding disorders patient perspective into the development of the CHOICE survey.  She also describes survey methods and preliminary data describing the characteristics of survey respondents.

May 18, 2017

Robert Sidonio, Jr., MD, MSc
Associate Director of Hemostasis and Thrombosis, Children’s Healthcare of Atlanta
Assistant Professor of Pediatrics, Emory University Hospital

Women and Girls with Bleeding Disorders: Challenges in Diagmosis and Management

In this webinar, Dr. Sidonio discusses the prevalence of bleeding disorders in women and girls and reviews patient and provider awareness of bleeding disorders.  He also provides an overview to management approaches for these conditions and describes the array of assessment tools currently available to healthcare providers.

March 16, 2017

Michael B. Streiff,  MD, FACP
Associate Professor of Medicine and Pathology
Associate Faculty, Armstrong Institute for Patient Safety and Quality
Medical Director, Johns Hopkins Anticoagulation Management Service and Outpatient Clinics
Medical Director, Special Coagulation Laboratory
Senior Consultant, Johns Hopkins Comprehensive Hemophilia Treatment Center
Johns Hopkins Medical Institutions, Baltimore, Maryland

Prevention of Venous Thromboembolism:  The Johns Hopkins Collaborative Experience

In this webinar, Dr. Streiff describes strategies that the Johns Hopkins Venous Thromboembolism (VTE)  Collaborative undertook to reduce the occurrence of  VTE in healthcare settings.  He discusses the role of evidence-based clinical decision support order sets in  improving VTE prevention performance.

February 16, 2017

Mark Skinner, JD
National Hemophilia Foundation
President & CEO,  Institute for Policy Advancement Ltd.

Menaka Pai, BSc, MSc, MD, FRCPC
Assistant Professor, Department of Medicine
Associate Member, Department of Pathology and Molecular Medicine
Consultant Laboratory Hematologist, Hamilton Regional Laboratory Medicine Program, McMaster University

Steven Pipe, MD
Chair, Medical and Scientific Advisory Council,
National Hemophilia Foundation
Director, Division of Pediatric Hematology and Oncology
Pediatric Medical Director, Hemophilia and Coagulation Disorders Program
Director, Special Coagulation Laboratory, University of Michigan

Evidence-Based Guideline on Hemophilia Care:  A Model for Rare Disease Guidelines

The National Hemophilia Foundation (NHF) initiated the development of an evidence-based clinical practice guideline to identify best practices in delivery of care for people with hemophilia in order to improve patient outcomes.

In this webinar, presenters describe the research that formed the basis for the guideline and discuss how the guideline will be put into action.

November 3, 2016

Neil Goldenberg, MD, PhD
Director, Thrombosis Program and Director of Research, Johns Hopkins All Children’s Hospital
Associate Professor of Pediatrics, Division of Hematology, Johns Hopkins University School of Medicine

Venous Thromboembolism in Children and Young Adults:  State of the Art in Diagnosis, Treatment, and Prevention

In this presentation, Dr. Goldenberg presents an overview of venous thromboembolism in children and young adults.  He discusses risk factors, diagnosis, treatment, outcomes, prognostic factors, and prevention strategies.  He also addresses what is currently known about obesity and venous thromboembolism.

October 12, 2016

Gary Raskob, PhD
Chair, World Thrombosis Day Steering Committee

Thrombosis: Know the Risk and Reduce the Burden

Watch this video to hear opening comments for World Thrombosis Day 2016, given by CDC Director Tom Frieden, MD, MPH.  Gary Raskob, PhD, presents an overview of the burden of thrombosis and describes prevention strategies for venous thromboembolism.

September 22, 2016

Brenda Riske, MS, MBA, MPA
University of Colorado Hemophilia & Thrombosis Center,
Regional Coordinator, Mountain States Region

Rick Shearer, BS
University of Colorado Hemophilia & Thrombosis Center,
Senior Data Manager

Judith R. Baker, DrPH, MSHA
Center for Inherited Blood Disorders and University of California Los Angeles;
Regional Coordinator, Western States Regional Hemophilia Network

Voices of 5,000+ Patients: The First National Survey on Experience of Care at U. S. Hemophilia Treatment Centers

In this webinar, the panelists describe the strategies used to 1) develop and pilot the Patient Satisfaction Survey, 2) administer the survey to HTC patients, and 3) manage and analyze the data collected from respondents. Presenters describe key national results and show how regional differences in participant demographics and diagnoses influence patient satisfaction.

April 21, 2016

Margaret Ragni, MD, MPH

Update on Treatment of Hepatitis C in People with Hemophilia

In this presentation, Dr. Ragni reviews the history of hepatitis C infection in people with hemophilia and discusses the risks and management, including increased rates of bleeding episodes.  She also provides an update on the latest new therapies designed to eliminate the virus from infected individuals.

March 3, 2016

Alex Spyropoulos, MD, FACP, FCCP, FRCP

Assessing the Risk for Venous Thromboembolism in Hospitalized Medical Patients

In this presentation, Dr. Spyropoulos discusses recent advances in 1) the use of clinical risk assessment models for venous thromboembolism and 2) potential biomarkers to identify patients at higher risk for VTE and to improve prevention of VTE in hospitalized patients.

February 18, 2016

Mike Soucie, PhD

Impact of Public Health Surveillance on Hemophilia Care

In this presentation, Dr. Soucie describes the public health surveillance  activities of CDC’s Division of Blood Disorders.  He provides an overview on how surveillance has assisted in efforts to prevent the complications of bleeding disorders.

For more information on the webinar series, please contact Cindy Sayers at cay1@cdc.gov.