Deafblindness

Deafblindness is the condition of little or no useful hearing and little or no useful sight.[1][2] Different degrees of vision loss and auditory loss occur within each individual, thus making the deafblind community unique with many types of deafblindness involved.[3] Because of this inherent diversity, each deafblind individual's needs regarding lifestyle, communication, education, and work need to be addressed based on their degree of dual-modality deprivation, to improve their ability to live independently. In 1994, an estimated 35,000–40,000 United States residents were medically deafblind.[4] Helen Keller was a well-known example of a deafblind individual.[5] To further her lifelong mission to help the deafblind community to expand its horizons and gain opportunities, the Helen Keller National Center for Deaf-Blind Youths and Adults (also called the Helen Keller National Center or HKNC), with a residential training program in Sands Point, New York, was established in 1967 by an act of Congress.

Deaf-blind American author, activist, and lecturer Helen Keller in 1904. Keller lost both her sight and hearing to meningitis at the age of 19 months.

Furthermore, the deafblind community has its own culture, creating a community of deafblindness similar to the deaf community and the blind community. Each community is made up of a group of individuals who have undergone similar experiences and have a homogeneous understanding of what it means to be deafblind, even with a large diversity of unique backgrounds.[6] Some deafblind individuals view their condition as a part of their identity.[7]

Epidemiology

The medical condition of deafblindness occurs in different forms.[3] For some, this condition might happen congenitally from birth as a result of genetic defect, for others it happens suddenly due to a form of illness or accident that results in a modality deprivation of either vision or hearing, or both.[8] A person might be born deaf and become blind at a later stage in life, or vice versa. In any given case of deafblindness, many possible onsets and causes of this condition exist; some happen gradually, others happen unexpectedly and suddenly.[9] The diagnosis of deafblindness could be medically classified into specific types based on one's symptoms and causes.[4]

The two overarching types of deafblindness are congenital and acquired.[9][10]: 36–74 

Congenital deafblindness: the condition of deafblindness from birth

Acquired deafblindness: condition of deafblindness developed later in life

Communication

Deafblind people communicate in many different ways as determined by the nature of their condition, the age of onset, and what resources are available to them. For example, someone who grew up deaf and experienced vision loss later in life is likely to use a sign language (in a visually modified or tactile form). Others who grew up blind and later became deaf are more likely to use a tactile mode of spoken/written language. Methods of communication include:

  • Use of residual hearing (speaking clearly, hearing aids, or cochlear implants) or sight (signing within a restricted visual field, writing with large print)
  • Tactile signing, sign language, or a manual alphabet such as the American Manual Alphabet or Deaf-blind Alphabet (also known as "two-hand manual") with tactile or visual modifications
  • Interpreting services (such as sign-language interpreters or communication aides)
  • Communication devices such as Tellatouch or its computerized versions known as the TeleBraille and Screen Braille Communicator.
  • Tadoma, a tactile modality

Multisensory methods have been used to help deafblind people enhance their communication skills. These can be taught to very young children with developmental delays (to help with pre-intentional communication), young people with learning difficulties, and older people, including those with dementia. One such process is Tacpac.

Deafblind people often use the assistance of people known as support-service providers (SSPs), who help the deafblind with tasks such as routine errands, guiding the deafblind through unfamiliar environments, and facilitating communication between the deafblind person and another person.[12]

Technology

Braille equipment includes a variety of multipurpose devices, which enhance access to distance communication. Some can be used as stand-alone devices connected via Wi-Fi, while others are paired with a mobile device to provide tactile access to e-mail, text messaging, and other modern communication resources. To receive Braille equipment, an eligible consumer must be proficient in Braille and must have access to the Internet or cellular telephone service.

Telebraille does not have a computer communications modem, but does have a TTY (TDD) modem. It was designed as a TTY for deaf-blind people and is also useful for face-to-face conversation. It has two components: The sighted component is a modified SuperCom TTY device. It has a qwerty keyboard and a single-line LED display. The display is regular size and is not particularly suited to people with low vision. The SuperCom TTY can be connected directly to the telephone line using a conventional telephone jack or the telephone receiver can be coupled to the SuperCom on a cradle on top of the device. Text flows past the display in a continuous stream, like tickertape. The SuperCom is connected to the Braille portion of the device by a cable that is about 2 ft (0.6 m) long. The Braille display is about 15 characters in width, although a knockout allows additional characters to be installed, at considerable additional cost. The Telebraille is able to communicate in ASCII mode, but is not compatible with conventional computer modems. There is what looks like a RS-232 socket on the back of the Braille component, but the instructions for the Telebraille state that this jack is for "future use" and that no computer devices should be attached to it.

A graphic Braille display can be used in sensing graphic data such as maps, images, and text data that require multiline display capabilities such spreadsheets and equations. Graphic braille displays available in the market are DV-2 (from KGS[13]), Hyperbraille,[14] and TACTISPLAY Table/Walk (from Tactisplay Corp.[15]). For example, TACTISPLAY Table[16] can show 120*100 resolution refreshable braille graphics on one page.[17]

The 1959 play The Miracle Worker, and its film adaptation released in 1962, recounts Anne Sullivan's efforts to draw Helen Keller from her world of blindness and deafness.[18]

The Who’s 1969 album Tommy tells one continuous life story about a deafblind mute boy named Tommy through songs.

The 2005 Bollywood film Black featured Rani Mukerji as a deafblind character named Michelle McNally.

The film Marie's Story (2014) relates the childhood and education of Marie Heurtin (1885–1921), a deafblind woman.

Haben Girma, the first deafblind individual to graduate from Harvard Law School, released an autobiography entitled Haben: The Deafblind Woman Who Conquered Harvard Law in 2019.[19]

Feeling Through is a 2019 American short drama film directed by Doug Roland that is the first film ever to star a deafblind actor (Robert Tarango) in a lead role; it is about a teenager and a deafblind man. It was nominated for the 2021 Academy Award for Best Live Action Short Film.[20][21]

See also
  • Tangible symbol systems
  • Tommy (rock opera)
  • White cane (used by blind people to assist them in walking)

References
  1. Keller, Helen (1938). Helen Keller's Journal, 1936-1937. Garden City, NY: Doubleday, Doran & Co.
  2. Kudlick, Catherine; Nielsen, Kim E. (2005). "Review of the Radical Lives of Helen Keller". Journal of American History. 4. 91 (4): 1533. doi:10.2307/3660309. JSTOR 3660309.
  3. Dammeyer, Jesper (November 2014). "Deafblindness: a review of the literature". Scandinavian Journal of Public Health. 42 (7): 554–562. doi:10.1177/1403494814544399. ISSN 1651-1905. PMID 25114064. S2CID 23967371.
  4. Deaf-Blindness, NCDB: National Center on. "Overview on Deaf-Blindness". nationaldb.org. Retrieved 2018-03-27.
  5. "NCDB Selected Topics: Deaf-Blindness Overview". Nationaldb.org. Retrieved 2012-03-04.
  6. Deaf-Blindness, NCDB: National Center on. "Culture and Community". nationaldb.org. Retrieved 2018-03-27.
  7. "Identity – DeafBlind Connection – Minnesota State Academies". www.msa.state.mn.us. Archived from the original on 2018-03-28. Retrieved 2018-03-27.
  8. "Conditions/Syndromes | Deafblind Information". Deafblindness Support Services. Retrieved 2018-03-27.
  9. "Causes". nhs.uk. Retrieved 2018-03-27.
  10. Heller, Kathryn; Kennedy, Cheryl. Etiologies and Characteristics of Deaf-Blindness (PDF). National Center on Deaf-Blindness.
  11. "HKNC: Common Causes of Combined Vision and Hearing Loss". www.helenkeller.org. Retrieved 2018-03-27.
  12. "What is a SSP?". Helen Keller National Center. Retrieved 4 May 2021.
  13. "Home of KGS Corporation". KGS Corporation.
  14. "Hyperbraille". Hyperbraille.
  15. "Home of Tactisplay Corp". Tactisplay Corp.
  16. "Full Page Braille Display being Launched by Tactisplay Corp". Tactisplay Corp.
  17. "This video shows operation of the device". YouTube. Archived from the original on 2021-12-12. Retrieved Sep 10, 2020.
  18. "The Miracle Worker (2000)". imdb.com. Retrieved 2017-12-23.
  19. Bobrow, Emily (2 August 2019). "Haben Girma Is a Trailblazer for the Deaf and Blind". The Wall Street Journal. Retrieved 7 November 2020.
  20. Angela Zapke (November 29, 2019). "New Film Features First DeafBlind Actor in a Lead Role". Retrieved March 15, 2021.
  21. "Feeling Through 2019 Full Cast and Crew". IMDb. Retrieved March 15, 2021.
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